Advocates for long Covid patients express latest frustration with federal response
Two report on long Covid are set to be released by the White House in August, but patient advocacy groups fear they won't go far enough to address concerns.
Two weeks before the release of two highly anticipated federal reports on long Covid, patient advocacy groups say they are frustrated with what they call an "underwhelming" federal response thus far.
Recent phone calls between administration officials and long Covid groups meant to offer a preview of the reports left patients without a clear vision of how the federal government is planning to help those whose lives have been derailed by ongoing illness, including trouble concentrating, overwhelming fatigue and debilitating pain.
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Kristin Urquiza, a co-founder of the group Marked by Covid, was one of the several dozen long Covid advocates invited to one such call on Friday.
When the call ended, “I went outside and just screamed,” she said.
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